The UK Infantile Spasms Trust (UKIST)

The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare seizure disorder infantile spasms, also known as West syndrome. The charity offers a lifeline to anxious parents via its online community and works alongside medical professionals to raise awareness of this little-known condition, which can be very difficult to recognise – but potentially very damaging if left untreated.

Information and support are available on our website https://ukinfantilespasmstrust.org/ and also our Facebook page https://www.facebook.com/UKInfantileSpasmsTrust/